What’s best for me
Once upon a time I used to worry about everything. I
worried about the big things: loved ones who were ill, finances, the state of
the world and whether or not I would achieve what I thought I wanted to
achieve.
I also worried about small things, although at the
time they felt mighty big too. Was I good enough? Did I wear the right clothes?
Should I have my hair long rather than short? Would people accept me if I
allowed myself to just be me?
Funnily enough I never worried about my own health
because I was never ill – or so I thought.
I was thirty-two when I was diagnosed with Crohn’s
disease and initially that verdict lead to more worry and stress. And to be
fair, for once I really did have something to obsess about. After all, Crohn’s
disease is a chronic condition; I would be stuck with it for the rest of my
life so giving the subject a lot of thought made perfect sense. Until, that is,
research showed me that while nobody knows what causes Crohn’s disease,
everybody agrees that stress triggers an episode.
I would love to be able to say that I tackled my
worrying the moment I found that piece of information, but unfortunately that’s
not how it works – at least, not for me. And to be fair, Crohn’s disease itself
gave me quite a few good reasons to be very worried. An operation to remove
about two feet of my intestines was almost immediately followed by a hernia.
Less than a week after they tried to fix the hernia I had another one and this
one required emergency surgery. And then I got an infection which forced me to
stay in hospital for almost a month. Oh, did I mention my daughter was only
three years old at the time and that we were in the middle of moving from the
Netherlands to Ireland?
That first year in Ireland was a nightmare. I’ll
spare you the details but the short version is that while we needed two incomes
to live comfortably there was no hope of me working. And then my husband lost
his job because my health meant he couldn’t work overtime. An allergic reaction
to steroids triggered a problem with the circulation in one of my legs which
meant walking became next to impossible. I was stuck in the house and in my
head and I worried. Of course I had very good reasons to be stressed, but the
more I thought about the situation I found myself in, the sicker I got which
lead to more worries which incapacitated me more, which.... you get the idea.
Almost exactly one year after arriving in Ireland I
found myself back in hospital, sicker than I’d ever been before. In fact, while
nobody told me, the doctors were so worried about me they advised my husband to
get my father to visit because they weren’t sure I’d survive. Since I’m writing
these words seventeen years later it is safe to say I did manage to stay alive.
But those two months in hospital were the start of a change in me and my
attitude towards life.
Of course it didn’t happen overnight, but I knew
with absolute certainty that unless I could change my views of myself, my
health, my life, my dreams and my expectations I’d spend the rest of my life
going from bad to worse health-wise. It wasn’t easy but I made changes. I
stopped worrying about what others might think. And the better I got at that
the more I realized it had never mattered.
I don’t need others to agree with me in order for my
opinion to be valid. I don’t need others to like me in order to like myself.
I’m allowed to say no when saying yes is going to make me uncomfortable or
stressed. And, most importantly, I learned that it is possible to decide to not
worry about almost anything, or to not think about it right now.
The funny thing is that being forced to come to this
conclusion is probably one of the best things to have ever happened to me. I
didn’t realize how much of my time was used up trying to please others until I
stopped doing it. Of course there are people who frown upon this behaviour and
accuse me of being selfish. And, up to a point they are right. If putting
myself first in order to stay as healthy as I possibly can is selfish, I’ll
wear that label with pride.
Next month I’m going to the UK GLBTQ Meet in
Bristol. Considering I’m an introvert at heart this could cause me all sorts of
stress, and chances are I won’t be able to avoid it completely. But I’ve
decided that the rules I’ve outlined above will still apply. It is okay for me
to stay on the sidelines if that’s where I’m most comfortable. I don’t have to
go up to people and start conversations because there’s nothing wrong with
waiting for them to come to me should they wish to do so. And if they don’t
that’s fine too. And should stress get the better of me regardless of my
defence mechanisms, there is no reason why I can’t take myself away from
proceedings for the hour or two I’ll need to settle myself and my body again.
It took me more than thirty years and a horrific
health scare but now I know the following is true...for everybody.
Bio:
See??? Good advice. I really think that advice column idea is a winner, my dear.
ReplyDeleteLOL, but no.
DeleteAll those things is what made you who you are today. I can't imagine you being a worrier. I've never known that side of you, but I love the woman you are now.
ReplyDeleteThank you. I love you too.
Delete:) Good for you!
ReplyDeleteThank you.
DeleteLove this blog. I did the same thing at rainbow con, no one will be upset at all. Enjoy it!
ReplyDeleteThank you. That's exactly what I needed to hear.
DeleteI'm glad you found a way to let the worry go. I really relate to what you say about how those of us with chronic issues need to be selfish at times, even... No, especially when people disapprove. For me that means setting up some strict limits that can confuse people, but I don't do that for them. :)
ReplyDeleteExactly. What those people don't realise is that if we didn't set those limits we wouldn't be able to participate at all, which would probably upset and/or confuse them even more.
Delete<3 I'm exceedingly glad you found it in yourself to be "selfish".
ReplyDeleteHave a wonderful time at the UK meet! Having been to GRL twice I have found people are very willing to respect everyone's comfort levels I hope/expect it will be similar there.
Thank you, Allison. Most of the time I know I'll be fine.
DeleteA beautiful post. You advice really spoke to me. Thanks for sharing.
ReplyDeleteYou're very welcome Kai and thank you. If my experiences help anybody even a little bit I'm very happy about it.
DeleteYour story gives me hope.. I hate that you had to go through all the health issues (still going through), as well as financial issues. It seems so cliche to say your experiences made you the person you are now. Thank you for sharing something so personal. ❤️
ReplyDeleteIt's only a cliche because it is true, Yukari. I wouldn't have believed it at the time but looking back now I can find it in me to be grateful for the lessons I've learned (if not the experiences themselves).
Delete<3 I'm exceedingly glad you found it in yourself to be "selfish".
ReplyDeleteHave a wonderful time at the UK meet! Having been to GRL twice I have found people are very willing to respect everyone's comfort levels I hope/expect it will be similar there.
<3 I'm exceedingly glad you found it in yourself to be "selfish".
ReplyDeleteHave a wonderful time at the UK meet! Having been to GRL twice I have found people are very willing to respect everyone's comfort levels I hope/expect it will be similar there.
Thank you Helena for this inspiring post! Your words speak for so many people who have chronic physical or mental health issues! It takes daily "try" to figure out how to function that day. Because you are so well loved ... you'll find so much love & support at GRL! Have a wonderful non stressful time ... knowing your friends & readers understand. Hi to your hubby ... Love to both of you from Alaska
ReplyDelete